Dystonia Coalition Projects

What we are studying

The purpose of this research study is to create a “repository”, an organized collection, used for future research on dystonia and other diseases. The repository will store things like blood, videos, and clinical information. Researchers around the world will be able to use information, videos, and samples from all participants to do research that may lead to new tests and treatments.

Who we are studying

  • Men and Women
  • Races:
    • White
    • African American
    • Asian
    • American Indian or Alaska Native
    • Native Hawaiian or Pacific Islander
    • Other
  • All Ethnicities
  • Ages 18+

Eligibility Criteria

  • Participants must have primary dystonia

What is involved

  • The study will last 1-2 hours. Participants may be asked to have follow-up visits for at most once a year.



Contact Information

Study Coordinator
Janet Hutchens

Disclaimer: The information on this website is for general informational purposes only and SHOULD NOT be relied upon as a substitute for sound professional medical advice, evaluation or care from your physician or other qualified health care provider.