What we are studying
The purpose of this study is to find out more information about people with PV, follow the course of the disease in these people, and find out how the disease and standard medical care affect the daily life of people being treated for PV. The use of healthcare resources (visits to the doctor, visits to the emergency room, visiting nurses, other caregivers, etc.) will also be studied.
About 2,000 men and women with a confirmed diagnosis of PV will participate in the study at approximately 200 community healthcare centers (doctors’ offices and clinics) or academic centers (university clinics and hospitals) across the United States.
There is also an optional sub-study in which you will be asked to take part. The purpose of the sub-study will be to examine various aspects of the blood of people who have PV to look at the proteins, genetic makeup, and changes that may occur over the period of the study. You will be asked to sign a separate consent form if you agree to take part in the sub-study. You do not have to take part in the sub-study in order to be in this main study; you can be in the main study without taking part in the sub-study. However, you cannot be in the sub-study without participating in the main study.
You will be compensated $15 for each set of questionnaires that you complete.