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Keratoconus

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Keratoconus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Conical Cornea
  • KC

Disorder Subdivisions

  • None

General Discussion

Keratoconus is a non-inflammatory eye (ocular) condition characterized by progressive changes of the shape of the cornea. The cornea is the thin-walled, "dome-shaped" transparent region forming the front of the eyeball; it serves as a protective covering and helps to focus or bend (refract) light waves onto the retina at the back of the eye. In those with Keratoconus, slowly progressive thinning of the cornea causes it to protrude forward in a conical shape, leading to blurry vision and other vision problems. Keratoconus often begins at puberty. Although the specific underlying cause of the condition is unknown, investigators indicate that genetic factors may play some role. In addition, in some cases, Keratoconus may occur in association with a variety of other disorders.

Resources

Lighthouse International

111 E 59th St

New York, NY 10022-1202

Tel: (800)829-0500

Email: info@lighthouse.org

Internet: http://www.lighthouse.org



Eye Bank Association of America

1015 18th Street, NW

Suite 1010

Washington, DC 20036

Tel: (202)775-4999

Fax: (202)429-6036

Email: info@restoresite.org

Internet: http://www.restoresight.org



NIH/National Eye Institute

31 Center Dr

MSC 2510

Bethesda, MD 20892-2510

United States

Tel: (301)496-5248

Fax: (301)402-1065

Email: 2020@nei.nih.gov

Internet: http://www.nei.nih.gov/



National Keratoconus Foundation

6222 Wilshire Blvd.

Ste. 260

Los Angeles, CA 90048

Tel: (310)623-4466

Fax: (310)623-1837

Tel: (800)521-2524

Email: info@nkcf.org

Internet: http://www.nkcf.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Cornea Research Foundation of America

9002 North Meridian Street

Ste. 212

Indianapolis, IN 46260

Tel: (317)844-5610

Fax: (317)814-2806

Tel: (800)317-3937

Email: elainevoci@cornea.org

Internet: http://www.cornea.org



Corneal Dystrophy Foundation

6066 McAbee Rd.

San Jose, CA 95120

USA

Fax: (408)490-2775

Tel: (866)807-8965

Email: exedir@cornealdystrophyfoundation.org

Internet: http://www.cornealdystrophyfoundation.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/24/2008

Copyright  1988, 1989, 2001, 2002 National Organization for Rare Disorders, Inc.

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