International network. Founded 1993. Support provided via e-mail or letter writing (regular mail delivery) for families of children and adults affected with Aarskog syndrome. Letter writing club, e-mail club for families and pen pal club for children 12 years old and up. Free complimentary information packet for any person in the United States.
Write:
Aarskog Syndrome Parents Support, c/o Shannon Caranci
62 Robin Hill Lane
Levittown, PA 19055-1411
Voice: 215-943-7131 (leave a brief message with your name, e-mail address and phone number).
E-mail: shannonfaith49@msn.com or aarskogsyndrome52@msn.com
Verified: 8/7/2012