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Ankylosing Spondylitis

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Spondylitis Association of America

International network. 25 affiliated groups. Founded 1983. Support, research, advocacy and education for patients, families, friends and health professionals concerned with ankylosing spondylitis and related diseases e.g.: (reactive arthritis/Reiter's syndrome, psoriatic arthritis, and inflammatory bowel disease). Publications, videotapes and newsletter. Guidelines available to start support groups.

Write:

Spondylitis Association of America

P.O. Box 5872

Sherman Oaks, CA 91413

Voice: 1-800-777-8189 or 818-892-1616

Fax: 818-892-1611

Website: http://www.spondylitis.org

E-mail: info@spondylitis.org

Verified: 7/2/2012

KickAS.org

Online. 6153 members. Support and information for persons with ankylosing spondylitis and related disorders. Provides inspiration, friendship and humor. Message board. Separate forums for affected persons, families, friends and affected teens.

Website: http://www.kickas.org

Verified: 6/29/2012

Juvenile Arthritis Alliance

National. 10 Regions. Founded 1981. Council of the Arthritis Foundation devoted to serving the special needs of children, teens and young adults with childhood rheumatic diseases (including juvenile rheumatoid arthritis, systemic lupus erythematosus and ankylosing spondylitis) and their families. Provides information, advocacy, educational materials, programs and conferences. Offers online support and local chapter locator. Membership $20/yr. (for Arthritis Fdn).

Write:

Juvenile Arthritis Alliance

1330 W. Peachtree St.

Atlanta, GA 30309

Voice: 404-872-7100 ext. 7538

Website: http://www.arthritis.org

Verified: 7/31/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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