(A Program of the United Spinal Association) National. 22 chapters and 40 support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, bi-monthly newsletter, support groups and peer counseling. Online listing of local chapters.

Write:

Nat'l Spinal Cord Injury Assoc.

75-20 Astoria Blvd

East Elmhurst, NY 11370

Voice: 1-800-962-9629 (Mon.-Fri., 8:30am-5pm EST)

Fax: 866-387-2196

Website: http://www.spinalcord.org

E-mail: info@spinalcord.org

Verified: 6/28/2012

National. 340 affiliated groups. Founded 1990. Organization dedicated to the life-long concerns of brothers and sisters of people with special health, developmental and mental health concerns. Provides workshops on sibling issues, hosts listservs and provides training on how to implement Sibshops (lively workshops for school-age siblings).

Write:

Sibling Support Project

6512 23rd Ave. NW, Suite 213

Seattle, WA 98117

Voice: 206-297-6368

Website: http://www.siblingsupport.org

E-mail: donmeyer@siblingsupport.org

Verified: 8/14/2012

International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group.

Write:

Project DOCC

18 Dunster Rd.

Great Neck, NY 11021

Voice: 516-829-0786

Fax: 516-498-1899

Website: http://projectdocc.org

E-mail: projdocc@aol.com

Verified: 7/26/2012

National. 21 chapters. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders.

Write:

United Spinal Association

75-20 Astoria Blvd.

Jackson Heights, NY 11370-1177

Voice: 718-803-3782 ext. 7203

Website: http://www.spinalcord.org

Verified: 7/25/2012

National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Support groups, publications, VA benefits counseling, magazine, information and referrals.

Write:

Paralyzed Veterans of America

801 18th St. NW

Washington, DC 20006

Voice: 1-800-424-8200 or 202-872-1300 (Mon.-Fri., 9am-5pm EST)

Website: http://www.pva.org

E-mail: info@pva.org

Verified: 7/24/2012

Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all four extremities of the body.

Website: http://www.makoa.org/quadlist.htm or http://www.facebook.com/quadlist

Verified: 6/29/2012

Online. 1500+ members. Founded 1998. Listserv for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters.

Website: http://groups.yahoo.com/group/sibnet

E-mail: sibnet-owner@yahoogroups.com

Verified: 7/2/2012

Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.

Write:

BM Regard

London, UK WC1N 3XX

Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 or http://uk.groups.yahoo.com/group/regardonline

E-mail: secretary@regard.org.uk

Verified: 7/24/2012

Online. Provides support for teenage siblings of people with disabilities.

Website: http://groups.yahoo.com/group/sibteengroup or https://www.facebook.com/group/sibteen

E-mail: info@siblingsupport.org

Verified: 7/26/2012