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Epilepsy / Convulsive Disorders

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Epilepsy Foundation

(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs).

Write:

Epilepsy Foundation

8301 Professional Place East

Landover, MD 20785

Voice: 301-459-3700; Professional Library: 1-800-332-1000; Spanish Speakers Only: 1-866-748-8008

Fax: 301-577-2684

Website: http://www.epilepsyfoundation.org

E-mail: info@efa.org

Verified: 7/11/2012

Pyridoxine Dependent Kids

Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards.

Website: http://groups.yahoo.com/group/b6children

E-mail: b6children-owner@yahoogroups.com

Verified: 8/2/2012

Charlie Foundation To Help Cure Pediatric Epilepsy

Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy.

Website: http://groups.yahoo.com/group/b6children

Verified: 6/29/2012

Ketogenic Diet Support Group

Online. Founded 2000. 34 members. Provides support for parents, family members, and caregivers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.

Website: http://health.groups.yahoo.com/group/ketogenic

E-mail: ketogenic-owner@yahoogroups.com

Verified: 8/16/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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