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HHT Foundation International, Inc.

Hereditary Hemorrhagic Telangiectasia

Self Help Clearinghouse

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HHT Foundation International, Inc.

International. Founded 1991. Mutual support and education for persons interested in hereditary hemorrhagic telangiectasia (aka Osler-Weber-Rendu syndrome). Supports clinical and genetic research. Counseling and advice for patients. Referrals to appropriate treatment centers. Annual patient/doctor conference. Tri-annual newsletter 'Direct Connection.' Aims to protect all members under the Right To Privacy Act.

Write:

HHT Foundation International, Inc.

P.O. Box 329

Monkton, MD 21111

Voice: 1-800-448-6389 (U.S.) or 410-357-9932 (International)

Fax: 410-357-9931

Website: http://www.hht.org

E-mail: hhtinfo@hht.org

Verified: 7/17/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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