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Leukodystrophy

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

MLD Foundation

Online. Support for parents and caregivers of children with metachromatic leukodystrophy.

Write:

MLD Foundation

21345 Miles Drive

West Linn, OR 97068-2878

Website: http://mldfoundation.org

E-mail: info@mldfoundation.org

Verified: 7/2/2012

United Leukodystrophy Foundation, Inc.

National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.

Write:

United Leukodystrophy Fdn., Inc.

224 N. 2nd St., Ste 2

DeKalb, IL 60115

Voice: 1-800-728-5483 or 815-748-3211

Fax: 815-748-0844

Website: http://www.ulf.org

E-mail: office@ulf.org

Verified: 7/25/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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