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Myositis

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Myositis Online Support Group

Online. Provides a community of support for patients affected my myositis. Site includes groups, blogs, forums and more.

Website: http://www.myositissupport.org

Verified: 8/15/2012

The Myositis Association

International network. 65 groups. Founded 1993. Dedicated to serving those with polymyositis, dermatomyositis, juvenile myositis and inclusion body myositis. Provides education and support. Also serves as a clearinghouse between patients and scientists. Newsletter, research reviews, literature and phone support. Area meetings available in limited areas, as well as annual conference. Guidelines available for starting similar groups. Fundraising for research. Dues $35/yr.

Write:

Myosistis Association of America

1737 King St. Suite 600

Alexandria, VA 22314

Fax: 202-466-8940

Website: http://www.myositis.org

E-mail: tma@myositis.org

Verified: 8/14/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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