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Myotubular Myopathy

Self Help Clearinghouse

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Myotubular Myopathy Resource Group

International network. Founded 1993. Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, literature, information and referrals.

Write:

Myotubular Myopathy Resource Group

c/o Pam Scoggin

2602 Quaker Dr.

Texas City, TX 77590

Voice: 409-945-8569

Fax: 409-452-2162

Website: http://www.mtmrg.org

E-mail: myopaty@optonline.net

Verified: 4/5/2012

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