International. Founded 1995. Support and networking for parents of children with nonketotic hyperglycinemia (NKH), an inherited metabolic disorder. Newsletter, online network, discussion board, phone support, information and referrals.
Write:
NKH International Family Network
481 Canisteo St.
Hornell, NY 14843
Voice: 607-324-3804
Website: http://www.nkh-network.org
E-mail: catrosenkh@yahoo.com
Verified: 7/25/2012