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Porphyria

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American Porphyria Foundation

National network. Founded 1981. Supports research, provides education and information to the public, patients and physicians. Networks porphyria patients and support groups. Quarterly newsletter, pen pal program, phone network and group development guidelines available. Donation $35/yr.

Write:

American Porphyria Foundation

4900 Woodway Drive, Ste 780

Houston, TX 77056-1837

Voice: 713-266-9617 (Mon.-Fri., 9am-4pm CST)

Fax: 713-840-9552

Website: http://www.porphyriafoundation.com

E-mail: porphyrus@aol.com

Verified: 9/2/2011

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