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Proteus Syndrome

Self Help Clearinghouse

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Proteus Syndrome Foundation

International network. Founded 1991. Provides support and education for individuals and/or families of children with Proteus syndrome. Supports research into the cure of this disorder. Newsletter, pen pals, literature and database of families. Fundraising.

Write:

Proteus Syndrome Foundation

4915 Dry Stone Drive

Colorado Springs, CO 80923

Voice: Kim 719-660-1346 (day) or Barbara 901-756-9375 (day)

Website: http://www.proteus-syndrome.org

E-mail: kimhoag201@gmail.com or jakebabs@aol.com

Verified: 8/25/2011

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