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Trisomy

Self Help Clearinghouse

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SOFT (Support Organization For Trisomy)

National. 50 chapters. Founded 1979. Support and education for families of children with trisomy 18, trisomy 13 and related genetic disorders (including trisomy 9). Education for professionals. Quarterly newsletter, pen pal program, phone network, regional gatherings, annual international conference and booklets. Online information on finding a local support group. Dues $25.

Write:

S.O.F.T., c/o Barbara VanHerreweghe

2982 So. Union St.

Rochester, NY 14624

Voice: Barbara VanHerreweghe, 585-594-4621 or 1-800-716-7638 (for families)

Fax: 585-594-1957

Website: http://www.trisomy.org

E-mail: barbsoft@rochester.rr.com

Verified: 7/17/2012

Trisomy 18 Foundation

Online. Support for parents and families of a child diagnosed with Trisomy 18. Message board and chatroom.

Website: http://www.trisomy18support.org

E-mail: t18info@trisomy18.org

Verified: 7/2/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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