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Turner's Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Turner Syndrome Support Network

National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Annual membership $35/yr. (US); $50/yr. (Canada); $60/yr. (overseas).

Write:

Turner Syndrome Support Network

6645 W. North Ave.

Oak Park, IL 60302

Voice: 1-800-362-4423 or 708-383-0808

Fax: 708-383-0899

Website: http://www.magicfoundation.org

E-mail: mary@magicfoundation.org

Verified: 7/17/2012

Turner Syndrome Society of the U.S.

National. Founded 1987. Support for individuals affected by Turner syndrome. Increases public awareness and promotes research about the disorder.

Write:

Turner Syndrome Society of the US

11250 West Rd. Ste. G

Houston, TX 77065

Voice: 1-800-365-9944 or 832-912-6006

Fax: 832-912-6446

Website: http://www.turnersyndrome.org

E-mail: tssus@turnersyndrome.org

Verified: 7/2/2012

Turner Syndrome Society of Canada

International. 5 chapters. Founded 1981. Provides support and education to Turner syndrome patients and their families. Tapes, publications, referrals to U.S. and Canadian groups. Newsletter, pen pal program, chapter development guidelines and annual conference.

Write:

Turner Syndrome Society of Canada

30 Cleary Avenue, Room 9

Ottawa, ON, CANADA K2A 4A1

Voice: 1-800-465-6744 or 613-321-2267

Fax: 613-321-2268

Website: http://www.turnersyndrome.ca

E-mail: info@turnersyndrome.ca

Verified: 7/2/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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