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Xeroderma Pigmentosum

Self Help Clearinghouse

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Xeroderma Pigmentosum Society

International network. Founded 1995. Provides sharing of support, information and coping skills for families affected by xeroderma pigmentosum. Quarterly informational newsletter. Promotes research into finding a cure. Information and referrals, phone support, conferences, literature, advocacy in community, education and protection. Free window tinting on homes of patients. Camp Sundown for patients of all ages and their families.

Write:

XP Society

437 Snydertown Rd.

Craryville, NY 12521

Voice: 518-851-9490

Website: http://www.xps.org

Verified: 4/3/2012

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