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Recurrent Respiratory Papillomatosis

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Recurrent Respiratory Papillomatosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Respiratory Papillomatosis
  • Juvenile Laryngeal Papilloma
  • Laryngeal Papilloma

Disorder Subdivisions

  • Juvenile Respiratory Papillomatosis
  • Adult-Onset Respiratory Papillomatosis

General Discussion

Recurrent Respiratory Papillomatosis is a rare viral disease characterized by multiple benign growths (papillomas) in the middle and lower respiratory tract. Symptoms usually begin with hoarseness and/or a change in voice. The growths may be surgically removed, but frequently recur and may require additional surgery. Affected individuals may experience long periods without recurrence (remission), and/or the disease may disappear completely. Children under five years of age are most commonly affected, although adults represent about one-third of all documented cases. People with Recurrent Respiratory Papillomatosis may have difficulty breathing (dyspnea) and/or experience other life-threatening complications if the papillomas block the airway.

Resources

Recurrent Respiratory Papillomatosis Foundation

P.O. Box 6643

Lawrenceville, NJ 08648

Tel: (609)530-1443

Fax: (609)530-1912

Email: bills@rrpf.org or marlenelin@aol.com

Internet: http://www.rrpf.org



NIH/National Heart, Lung and Blood Institute

P.O. Box 30105

Bethesda, MD 20892-0105

Tel: (301)592-8573

Fax: (301)251-1223

Email: nhlbiinfo@rover.nhlbi.nih.gov

Internet: http://www.nhlbi.nih.gov/



NIH/National Institute of Allergy and Infectious Diseases

Office of Communications and Government Relations

6610 Rockledge Drive, MSC 6612

Bethesda, MD 20892-6612

Tel: (301)496-5717

Fax: (301)402-3573

Tel: (866)284-4107

TDD: (800)877-8339

Email: ocpostoffice@niaid.nih.gov

Internet: http://www.niaid.nih.gov/



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



British Paediatric Orphan Lung Disease

Email: admin@bpold.co.uk

Internet: http://www.bpold.co.uk



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/3/2008

Copyright  1997, 1999, 2002 National Organization for Rare Disorders, Inc.

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