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Leukodystrophy

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United Leukodystrophy Foundation, Inc.

National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.

Write:

United Leukodystrophy Foundation, Inc.

224 N. 2nd St., Ste 2

DeKalb, IL 60115

Voice: 1-800-728-5483 or 815-748-3211

Fax: 815-748-0844

Website: http://www.ulf.org

E-mail: office@ulf.org

Verified: 1/8/2013

MLD Foundation

Online. Support for parents and caregivers of children with metachromatic leukodystrophy.

Write:

MLD Foundation

21345 Miles Drive

West Linn, OR 97068-2878

Website: http://mldfoundation.org

E-mail: info@mldfoundation.org

Verified: 1/9/2013

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