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Polymyositis

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Polymyositis is not the name you expected.

Disorder Subdivisions

  • Primary Idiopathic Polymyositis
  • Childhood Polymyositis
  • Polymyositis Associated with Malignant Tumors
  • Polymyositis Associated with Sclerodermatomyositis
  • Polymyositis Associated with Mixed Connective Tissue Disease (Overlap Syn)

General Discussion

Polymyositis is a systemic connective tissue disorder characterized by inflammatory and degenerative changes in the muscles, leading to symmetric weakness and some degree of muscle atrophy. The areas principally affected are the hip, shoulders, arms, pharynx and neck.

Resources

Myositis Association

1737 King Street

Suite 600

Alexandria, VA 22314

USA

Tel: (703)299-4850

Fax: (703)535-6752

Tel: (800)821-7356

Email: tma@myositis.org

Internet: http://www.myositis.org



American Autoimmune Related Diseases Association, Inc.

22100 Gratiot Ave.

Eastpointe, MI 48021

Tel: (586)776-3900

Fax: (586)776-3903

Tel: (800)598-4668

Email: aarda@aarda.org

Internet: http://www.aarda.org/



Arthritis Foundation

1330 West Peachtree Street, Suite 100

Atlanta, GA 30309

USA

Tel: (404)872-7100

Tel: (800)283-7800

Email: arthritisfoundation@arthritis.org

Internet: http://www.arthritis.org



Muscular Dystrophy Association

3300 East Sunrise Drive

Tucson, AZ 85718-3208

USA

Tel: (520)529-2000

Fax: (520)529-5300

Tel: (800)572-1717

Email: mda@mdausa.org

Internet: http://www.mda.org/



Myositis Support Group

146 Newtown Road

Woolston

Southampton, S019 9HR

United Kingdom

Tel: 02380449708

Fax: 02380396402

Email: msg@myositis.org.uk

Internet: http://www.myositis.org.uk



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Autoimmune Information Network, Inc.

PO Box 4121

Brick, NJ 08723

Fax: (732)543-7285

Email: autoimmunehelp@aol.com



European Society for Immunodeficiencies

1-3 rue de Chantepoulet

Geneva, CH 1211

Switzerland

Tel: 410229080484

Fax: 41229069140

Email: esid@kenes.com

Internet: http://www.esid.org



AutoImmunity Community

Email: moderator@autoimmunitycommunity.org

Internet: http://www.autoimmunitycommunity.org



Myositis Support Group at the Hospital for Special Surgery

2nd Floor Conference Center, Room A

535 East 70th Street

New York, NY 10021

Tel: (212)774-7623

Fax: (212)774-2333

Email: fischbeins@hss.edu

Internet: http://www.hss.edu/MyositisGroup.asp



Cure JM Foundation

826 Lynwood Drive

Encinitas, CA 92024

USA

Tel: (760)487-1079

Fax: (760)230-2243

Email: info@curejm.com

Internet: http://www.curejm.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  10/12/2007

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