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Trisomy

Self Help Clearinghouse

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Trisomy 18 Foundation

Online. Support for parents and families of a child diagnosed with Trisomy 18. Message board and chatroom.

Website: http://www.trisomy18support.org

E-mail: t18info@trisomy18.org

Verified: 2/12/2013

SOFT (Support Organization For Trisomy)

National. 50 chapters. Founded 1979. Support and education for families of children with trisomy 18, trisomy 13 and related genetic disorders (including trisomy 9). Education for professionals. Quarterly newsletter, pen pal program, phone network, regional gatherings, annual international conference and booklets. Online information on finding a local support group. Dues $25.

Write:

S.O.F.T.

c/o Barbara VanHerreweghe

2982 So. Union St.

Rochester, NY 14624

Voice: 585-594-4621 / Barbara Van Herreweghe or 1-800-716-7638 (for families)

Fax: 585-594-1957

Website: http://www.trisomy.org

E-mail: barbsoft@rochester.rr.com

Verified: 2/7/2013

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