Your ALS Team
Neuromuscular specialists are neurologists who have special interest and training in the care of ALS patients. They meet with patients and families to develop an overall plan of care and prescribe medication and equipment as needed. These physicians also run the ALS clinical research trials.
Theresa Johnston-Crews, RN, BSN, MBA
Clinical Research Nurse
The nurse clinician is a registered nurse experienced in assessing the needs of the ALS patient. She has telephone contact with the ALS patient or their caregiver prior to clinic visits to coordinate patient care with the appropriate therapist. The nurse clinician also provides education and nursing support to ALS patients and families.
Mozhdeh Marandi, MD
The research coordinator may talk with you in advance or during clinic appointments about opportunities to participate in research studies including clinical trials where experimental ALS treatments are tested. Our goal is for everyone to have a chance to contribute to ALS research in some way, but we certainly respect the wishes of those who do not want to do so.
The clinic coordinator arranges all ALS Center patient appointments with physicians, therapists and other medical professionals. She arranges all necessary follow-up tests and serves as a point person for questions and problems. You are encouraged to contact Sarah at 336-716-2309 with any questions regarding scheduling or travel directions.
Katherine Conrad, MSW
The ALS social worker assists with individual and family counseling and stress management. She also discusses community resources such as social security, Medicare, Medicaid, home health, hospice, support groups, advanced directives and durable medical equipment.
Karen Downes, MEd/CCC
The speech pathologist evaluates a patient's speech and swallowing capabilities. Patients with speech problems may be trained to use alternative equipment for communication. If a patient is having difficulty swallowing, a speech therapist may have suggestions to improve this function.
Assistive Technology Consultant
Paul Eklund, CVE
An assistive technology consultant is available at the ALS Clinic to assess patients' needs for assistive devices. Equipment is available to help patients obtain a maximum level of independence at home. For example: environmental controls, telephone access, recreation, augmentative communication, and computers.
Kate Phillips, OT
Occupational therapy helps people maintain their independence with feeding, dressing, bathing and work performance through adaptive equipment and energy conservation.
Connie Paladenech, RRT
The respiratory therapist assesses respiratory status for all patients during clinic and educates patients and families on the use of equipment that can support natural breathing. In addition to being present at clinic, the respiratory therapist is also available for consultation between clinic visits and can perform home visits if necessary.
Michelle Reeder, PT
Physical therapists assist people with ALS in maintaining and building muscle strength by providing exercise programs and assistive devices to optimize function and level of independence.
Monica Moorefield, RD
Catfish Hunter ALSA Chapter Representative
Suzanne Gilroy, MSW
The ALS Assoc. Jim “Catfish” Hunter Charter
The chapter representative provides information to patients and families about chapter grants and programs, as well as other community resources.