At Wake Forest Baptist Health, our multidisciplinary clinic emphasizes a team-based approach to caring for patients with neurofibromatosis. We have experts specifically trained in the management of cutaneous neurofibromas, plexiform neurofibromas, and other symptoms of neurofibromatosis. Patients receive a care plan that is specific to their needs and may include:

  • Comprehensive genetic testing when needed
  • Personalized treatment of cutaneous neurofibromas and skin lesions
  • Specialized monitoring of benign and malignant tumors
  • Pediatric and adult specialty care for patients of all ages and families
  • Cutting-edge surgical and radiosurgical treatments
  • Multidisciplinary tumor board with expertise from all specialty areas
  • Specialized targeted drug therapy for selected tumors

Our Comprehensive Neurocutaneous Syndromes clinics include a team of experts dedicated to taking the best care of patients with tumor syndromes such as neurofibromatosis and tuberous sclerosis. Our clinic is among a handful that provides comprehensive care to pediatric and adult patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2), and schwannomatosis.

Our specialty team includes nationally recognized experts including:

  • Geneticists
  • Pediatricians
  • Neurologists
  • Neurosurgeons
  • Oncologists
  • Dermatologists
  • Plastic Surgeons
  • Otolaryngologists (Ear, Nose, and Throat)
  • Radiologists
  • Neuropsychologists
  • Orthopedic Surgeons
  • Ophthalmologists (Eye Doctors)
  • Researchers

Medical Conditions Treated

Partners and Affiliations

We work with national organizations to deliver unparalleled care to patients with these conditions. Our Comprehensive Neurofibromatosis Clinic is recognized by the Children’s Tumor Foundation, a national and international collaboration of medical centers that work together to find new treatments, identify best-practices, and provide evidence-based care across the lifespan for patients with neurofibromatosis.