At Wake Forest Baptist Health, we care for tuberous sclerosis across the lifespan of a patient and family. We have both a pediatric and adult tuberous sclerosis clinics that personalize care for the needs of the patient and hand-off care internally as children become adults. Our experts specialize in the latest management of tuberous sclerosis and are working to identify new discoveries that will change how we manage this condition in the future. Patients receive a care plan that is made specific to their needs and may include:

  • Targeted treatment with medications such as everolimus for seizures, renal tumors, brain tumors, or lung disease
  • Yearly screening of brain health and psychological impacts of the disease
  • Comprehensive neurocognitive testing when needed
  • Topical targeted treatments for facial lesions
  • Multidisciplinary seizure management led by seizure experts who focus on tuberous sclerosis
  • Laser-therapy, laser-surgery and other minimally invasive treatments when surgery is needed 

Our Comprehensive Neurocutaneous Syndromes clinics include a team of experts dedicated to taking the best care of patients with tumor syndromes such as tuberous sclerosis and neurofibromatosis. Our clinic is among a handful that provides comprehensive care to pediatric and adult patients with tuberous sclerosis (TS), and other inherited tumor syndromes.

Our specialty team includes nationally recognized experts including:

  • Geneticists
  • Pediatricians
  • Neurologists
  • Neurosurgeons
  • Oncologists
  • Dermatologists
  • Plastic Surgeons
  • Otolaryngologists (Ear, Nose, and Throat)
  • Radiologists
  • Neuropsychologists
  • Orthopedic Surgeons
  • Ophthalmologists (Eye Doctors)
  • Researchers

Medical Conditions Treated

  • Tuberous Sclerosis

Partners and Affiliations

We work with national organizations to deliver unparalleled care to patients with these conditions. Our clinic is designated and affiliated with the Tuberous Sclerosis Alliance. This alliance helps us work together with tuberous sclerosis clinics across the nation to share successes, develop new treatments, improve quality of life, and educate other providers on optimal care for adult and pediatric patients with tuberous sclerosis.