Educational Information
Caregiver and Sibling Health
Here are some articles and resources about support available.
Caring for a child who has a serious illness is challenging for many families and can be difficult emotionally. This article has tips that may help you in dealing with these many issues.
As a parent, you may wonder how to help siblings of your child with special needs understand and cope. This article offers developmentally appropriate ways to communicate with and support all of your children.
When you are caring for a child with medical complexity, it is important that you also take care of yourself. Read these tips on how to find general caregiver support.
One way to find time to care for yourself as a caregiver is to utilize respite care. Here is some information on what respite care entails and how to locate it in your area.
Medical Support
Here are some resources to help with medical support for G-Tubes and more.
The following links offer information about the procedure and a video about parents’ experiences with G-tubes:
Choosing a Home Health Provider
You may need help at home to care for your child’s medical needs. These resources are meant to help you as you figure out how to navigate the home health care system.
View a list of questions to consider when choosing a home health provider.
Here is some helpful information on how to manage home health nursing care.